Editors Note: This column is a new series of articles by Alex Richmond, brother of Palmer Richmond - the inspiration for CNS Foundation. In his unique role as assistant director of the Foundation, Alex will write about his life as a sibling to his brother with special needs.
I want to share with you a few important items we at CNS Foundation are currently working on.
First, the Oregon Health & Science University Doernbecher Children's Hospital has begun a Phase Ib clinical trail sponsored by StemCells, Inc. for Neuronal Ceroid Lipofuscinosis (NCL, also referred to as Batten Disease). If you, or anyone you know may be interested in this study or enrollment please share this important trial information. . . .
CNS’s Race for Cures 2011
Join us for CNS’s 2nd Annual Race for Cures, partnering with the runDisney Half Marathon and Family Fun 5K over Labor Day weekend, September 2-4, 2011. We make it easy for you to help us help others! By registering on this website, you will have access to a password protected Participant Center where you can create your own personalized donation page, send out recruiting and fundraising emails, record gifts you receive offline and view a record of all gifts that you’ve received on-line.