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Research: Conferences and Workshops

 

 
 
  Comprehensive efforts to speed regenerative therapies

Often families are told that the pace of science is beyond control and that it is better for them to accept “reality” rather than pursue progress. In truth, scientific progress does not occur in a vacuum and history is filled with examples of patient advocacy groups bringing about change more quickly than predicted by conventional wisdom. Families of polio victims worked tirelessly with scientists to develop a vaccine that successfully eradicated this devastating condition from the United States . The work of CNS can similarly speed development of regenerative therapies.

Thus, CNS has developed a comprehensive strategy to develop effective regenerative therapies as quickly as possible:
  • Establish a clinical trails network, linking researchers and eliminating barriers to pediatric neurological therapies
  • Increase private and government funding to speed completion of the research needed to move this science from the laboratory to the clinic
  • Encourage young scientists to pursue children’s neurological research so more innovative minds are working to heal our children
  • Sponsor scientific forums that hasten progress by helping researchers compare findings and formulate strategy with colleagues around the world
  • Collaborate with multiple research advocacy groups so that resources are pooled rather than fragmented and research is coordinated rather than duplicated
 

July 15-16, 2010
Accelerating Therapeutic Development for Pediatric Neurological Disorders: Establishing Clinical Centers of Excellence
Washington, DC

July 15 & 16th CNS hosted a symposium in Washington D.C. that brought together policy makers, researchers, non-profit organizations, and industry to address the barriers to clinical trials and treatments for children affected by neurological conditions.  The meeting, Accelerating Therapeutic Development for Pediatric Neurological Disorders: Establishing Clinical Centers of Excellence, had a primary goal of fully fleshing out the feasibility and details of creating a network of locations throughout the United States that would ultimately be able to coordinate, plan and execute pediatric brain studies.

Read more. . .

February 10-12, 2008
Static Brain Injury Workshop Focusing closely on creating new ideas for static brain injury repair
Houston, Texas

CNS, in collaboration with Texas Children’s Hospital, there will be a Static Injury Brain Workshop held at the Hotel ZaZa.  Some of the top scientists and researchers will be in attendance from all over the nation.  By setting the stage for multidisciplinary collaboration, we are giving scientists a format to make sure that our children are getting the science they need.

Read more. . .

September 16-19, 2007
Young Neuroscientists' Workshop - Focusing more young scientists on brain repair for children. 
Solvang, California

In September 2007, CNS and the UC Santa Barbara Neuroscience Research Institute  launched the first annual Young Neuroscientists' Workshop. This meeting series is intended to expose young neuroscientists to emerging thinking about childhood brain disorders, with the long-term aim of seeing more of these young investigators incorporate the study of these disorders into their career objectives.
This event sponsored by CNS Foundation brought 10 senior faculty members together with 25 junior scientists in Solvang, CA for four days of intensive scientific discovery and collaboration.

Read more. . .

February 28 - March 3, 2006
Neurotrophic Factors as Therapeutic Treatments for Pediatric Neurological Disorders: Moving the Field Forward
San Jose, California

On February 28- March 3rd, CNS co-hosted a scientific workshop in San Jose, California, entitled Neurotrophic Factors as Therapeutic Treatments for Pediatric Neurological Disorders: Moving the Field Forward.  This meeting, held in collaboration with the A-T Children’s Project, focused some of the top researchers in the field of neurotrophin biology on new treatment strategies for special-needs children.  Neurotrophins (pronounced neu-ro-tro-fins) are protein factors within the brain that promote the assemblage of brain cells into functional networks.

Read more. . .

March 11-12, 2005
Children's Neurobiological Solutions Foundation 2005 Annual Board Retreat
Boston, Massachusetts

Children’s Neurobiological Solutions Foundation held its 2005 Board of Directors Annual retreat at the historic Bulfinch Building in Boston on the weekend of March 11-12, bringing together the members of the CNS Board of Directors and Scientific Advisory Board, and special guests. CNS Board member Dr. Jeffrey D. Macklis, director of the Massachusetts General Hospital-Harvard Medical School Center for Nervous System Repair in Boston, generously hosted the retreat which was conducted, in part, at the renowned Ether Dome. The two-day event included scientific presentations, a tour of the MGH-HMS Center for Nervous System Repair, dinner at Boston’s legendary Grill 23, a CNS Think Tank and an Executive Session of the Board of Directors.

Read more. . .

June 15-18, 2004 :
Stem Cells as a Therapeutic Treatment for Pediatric Neurological Disorders: Planning a Phase I Clinical Trial

Tarrytown, New York

In collaboration with the A-T Children’s Project, CNS sponsored a three-day conference from June 15-18, 2004 in Tarrytown , New York . The objective of this meeting was to plan research projects needed to move neural stem cell therapy from laboratory animals to Phase I clinical trials in children within 2-3 years. For more details.

Click here and read Moving Pediatric Brain Repair Closer to Clinical Trials

  November 10, 2003 Satellite Session:
MAKING A DIFFERENCE IN THE LIVES OF CHILDREN: STEM CELLS AND REPAIR OF THE DEVELOPING BRAIN

The Society for Neuroscience 33rd Annual Meeting, New Orleans

CNS Foundation hosted a panel discussion on how stem cell research could offer new avenues for recovery from pediatric brain injury and disease. Speakers provided examples through specific models of disease.

Click here to read Conference Report: Stem Cells and Neurologic Repair in Children

  July 11th, 2002:
2nd Annual Scientific Advisory Board Think Tank
Boston , MA

Boston, MA Integral to CNS’s mission is the collaborative relationship between the parents and the scientists. The key role that the parents play is to present to the scientists the critical data that they have acquired by observing their children’s behavior. The goal is not only to highlight the sense of urgency we parents feel on a daily basis, but to also help determine goals and strategies for future research.

Read more . . . A Parent’s Perspective on the Children’s Neurobiological Solutions Foundation’s 2nd Annual Scientific Advisory Board Think Tank

  November 28th, 2001:
1st Annual Scientific Advisory Board Meeting


Meeting via teleconference in November, the parents and scientists of the CNS Foundation debated different strategies to move the science forward. Members agreed that a significant way the foundation can accelerate biomedical discovery and speed the translation of scientific insights into effective treatments and cures is to orchestrate collaboration among investigators. It became clear that by helping coordinate individual scientific efforts, the roadblocks to progress can be more readily overcome.

Read more about this meeting: CNS Foundation Finds Its Rhythm As Researchers Discuss Ways To Move Forward

 
 

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Learn about the new science of Regenerative Medicine

Overview of Brain Cells
Pediatric Neurological Disorders: Damaged Brain Cells
New Research: Brain Cells can be Repaired and Regenerated
The Task Ahead: Moving Science from the Lab to the Clinic


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The power to develop therapies and cures for children with neurological disorders is not just in the scientists' hands but in all of our hands. Working together, we will get there sooner.
   
 
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Learn about the new science of Regenerative Medicine

Overview of Brain Cells

Pediatric Neurological Disorders: Damaged Brain Cells

New Research: Brain Cells can be Repaired and Regenerated

The Task Ahead: Moving Science from the Lab to the Clinic

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