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Danny is known as a Trooper
The first thing that people notice about Danny is his beautiful head of gorgeous, dark, super thick hair. Unfortunately, his hair also serves to disguise his smaller skull because of his diagnosis of Secondary Microcephaly. Due to an anoxic injury at birth, Danny's other diagnoses include Cerebral Palsy, Cortical Vision Impairment, Reflux and Cognitively Impaired.
Danny loves to be cuddled and played with. He is a trooper that bravely faces every new situation we put him in. Besides his parents, Danny's favorite people include his Grandparents who love him dearly. Danny "sings" along with his Grandpa who provides endless stimulation by singing and playing with him and Grandma sees plenty of smiles while she massages his chubby body from head to toe with the hopes of waking up every little part of him. Gabriel, his baby brother, his Godparents and close circle of friends provide relentless support towards Danny's recovery.
Danny just celebrated his 8th birthday in January and has beaten his original prognosis by doing so (by 7 years!). When Danny was just 3 months old, his neurologist said that he would probably die of aspiration pneumonia before his first birthday due to the degree of his injury. As a family, we were absolutely devastated by the news but were driven to beat the odds. Since the time of his original prognosis, we have chased almost every therapy under the sun with the hope to improve the quality of his life. The reality is that Danny has gotten better, his EEGs prove that he has, but the gap between his current state and "developmentally appropriate" is HUGE.
We need to bridge that gap and I believe that CNS will play significant role towards that goal.
I was thrilled to find CNS through our quest to find answers to Danny's medical problems because they share our personal vision regarding brain injuries and the potential for recovery that our children possess. I am so excited about their work that I share information about CNS every single opportunity that I get. If Danny could speak, I'm sure he would say, "If you know my Mommy, you know about CNS!"
