Hayven Blue Rae
This Is Me!!!!!!
My name is Hayven Blue Rae. I was born on February 17, 2001. I was diagnosed with Agenesis of the Corpus Callosum, Cerebral Palsy and Seizures. I have tried over 11 anti-epileptic medications and am finally getting good seizure coverage with the ketogenic diet. I don't walk yet, but I can crawl and stand on my own. My muscle tone is low, so balance is a problem. The seizures have caused me to break most of my front teeth, and I wear a helmet to protect my head. [thank goodness that these are only my baby teeth] I have pink streaks in my hair, I think its pretty fun! I don't talk yet, but I make lots of sounds and do a little sign language. I have lots of therapies at the Portland Oregon Shriner's Hospital for Children. I have had Achilles cord lengthening surgery. I wear AFO's for proper foot placement and support. I travel in a wheelchair, but I prefer to crawl around on my own. I go to special needs pre-school and am in an inclusive daycare where my mommmy works sometimes. Mommy is going to school to become a special education teacher! I have an american bulldog puppy named Pangea who is hopefully going to go through service dog training when she is older so she can become my service dog. that would be great!!!! send me an email if you are interested in learning about Agenesis of the Corpus Callosum, [that means the "bridge" between the halves of my brain doesn't connect the way it is supposed to] or message me if you just want to say hi!!! I'm a bright and vibrant little girl who .loves to cuddle, bounce and play!!! thanks for getting to know me!!!!!email me at firstname.lastname@example.org