Monday, November 10, 2014  ·  Posted by Sara Faye Richmond

Palmer Clay Richmond, Our Inspiration, 9/11/95 - 10/25/14

He was a teacher, a son, a brother, a friend, an inspiration. Whatever he was to you he was special. Our relationship with him will continue as our experiences with him push us all to love deeper, to work harder and to be better. As we face our next challenge, we’ll think of his grace and his quiet determination. Palmer Clay, gratitude does not begin to encompass how we feel for all that you have given us. We love you Palmer.

Saturday, November 1, 2014  ·  Posted by Alex Richmond, Executive Director

Get Mapped!!!

Palmer was never diagnosed. He lived 19 beautiful years, visited with dozens if not hundreds of doctors, nurses, and scientist and underwent multiple genetic testing but he was never diagnosed. Some thought he fell on spectrum of Cerebral Palsy, some thought he didn’t. And at this point, we may never know what underlying ailment or condition triggered Palmer’s central nervous system to not function typically.

Palmer’s story is not unique. Today, there are over 14 million children, just in the US, that are living with a neurological condition. And while many of these diseases are now diagnosable, the overwhelming majority do not have a cure. This is unacceptable.

Tuesday, September 2, 2014  ·  Posted by Davis George

Thanks to a 100 million dollar grant through the White House Brain Mapping Project to the NIH, NSF, and DARPA (Defense Advanced Research Projects Agency), a dynamically new approach to how we view the brain has arisen: the CLARITY Brain Imaging Technique. With this technique, scientists are hoping to map brain connections on a large scale, visualizing how every single neuron is fired and interconnected with the other ones in the system. 

Tuesday, February 4, 2014  ·  Posted by Davis George, Advocate

In My Brother’s Corner is a blog series featuring Davis George, the brother of Jacob. In this post, Davis writes on the need for awareness of treatments and advocacy for the advancement of these treatments.

Monday, September 30, 2013  ·  Posted by Alex Richmond, Executive Director

Since joining CNS Foundation a few years ago I have communicated directly with hundreds, if not thousands, of parents, grandparents, friends and family members caring for a child with a neurological disorder.  One thing has been abundantly clear…  The science behind the disease along with the practical realities of raising a special needs child is complicated.  For someone without a PhD, the technical and scientific jargon can be confusing, especially when we are trying to understand cutting-edge research.