Palmer was never diagnosed. He lived 19 beautiful years, visited with dozens if not hundreds of doctors, nurses, and scientist and underwent multiple genetic testing but he was never diagnosed. Some thought he fell on spectrum of Cerebral Palsy, some thought he didn’t. And at this point, we may never know what underlying ailment or condition triggered Palmer’s central nervous system to not function typically.
Palmer’s story is not unique. Today, there are over 14 million children, just in the US, that are living with a neurological condition. And while many of these diseases are now diagnosable, the overwhelming majority do not have a cure. This is unacceptable.
The Pediatric Brain Mapping Project is the first step towards building a searchable natural history database for doctors and scientists to use to help lead to the discovery of the next generation of treatments and cures for the diseases and disorders these children face.
In order to be successful we need your help identifying ALL of these children across the country and around the world.
