Monday, November 10, 2014  ·  Posted by Sara Faye Richmond

Palmer Clay Richmond, Our Inspiration, 9/11/95 - 10/25/14

He was a teacher, a son, a brother, a friend, an inspiration. Whatever he was to you he was special. Our relationship with him will continue as our experiences with him push us all to love deeper, to work harder and to be better. As we face our next challenge, we’ll think of his grace and his quiet determination. Palmer Clay, gratitude does not begin to encompass how we feel for all that you have given us. We love you Palmer.

Saturday, November 1, 2014  ·  Posted by Alex Richmond, Executive Director

Get Mapped!!!

Palmer was never diagnosed. He lived 19 beautiful years, visited with dozens if not hundreds of doctors, nurses, and scientist and underwent multiple genetic testing but he was never diagnosed. Some thought he fell on spectrum of Cerebral Palsy, some thought he didn’t. And at this point, we may never know what underlying ailment or condition triggered Palmer’s central nervous system to not function typically.

Palmer’s story is not unique. Today, there are over 14 million children, just in the US, that are living with a neurological condition. And while many of these diseases are now diagnosable, the overwhelming majority do not have a cure. This is unacceptable.

Tuesday, October 21, 2014  ·  Posted by Alex Richmond, Executive Director

CNS Foundation has partnered with “In My Brother’s Corner” contributor Davis George to begin dissemination of the NeuroSurvey. This survey is intended to assess awareness and identify where information is lacking in the general public regarding pediatric neurological conditions. The survey can be shared on social media using the hashtag #NeuroSurvey. A report on the findings will be compiled and sent out in order to assist patient advocates in identifying spaces where advocacy and education could be directed differently. Click “Read More” to find a link to the survey.

Friday, September 12, 2014  ·  Posted by Alex Richmond, Executive Director

“Andiamo is a social venture creating a new user-centred children’s orthotics service. Our aim is to drastically reduce wait times from 13 weeks to 48 hours, by using 3D scanning and printing technology.”

Tuesday, September 2, 2014  ·  Posted by Davis George

Thanks to a 100 million dollar grant through the White House Brain Mapping Project to the NIH, NSF, and DARPA (Defense Advanced Research Projects Agency), a dynamically new approach to how we view the brain has arisen: the CLARITY Brain Imaging Technique. With this technique, scientists are hoping to map brain connections on a large scale, visualizing how every single neuron is fired and interconnected with the other ones in the system.