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WHAT:
The NeuroSurvey is an initiative to assess knowledge, consciousness, and awareness of neurological disorders, and in doing so, assist organizations and individuals in becoming better advocates on a local, state, and national level.
WHO:
CNS Foundation is collaborating with two Basking Ridge, NJ students, Davis George and Nikhil Kapadia. CNS Foundation is a nonprofit organization that facilitates research on the developing brain, provides information and resources to impacted families, and works with other patient advocates to raise public awareness about the importance of pediatric neurological research to expedite discovery of treatments and cures.
WHY:
The information provided is critical to assist organizations and individuals working to benefit pediatric neurological conditions to take action and increase public funding for treatments and cures. The dissemination of accurate and useful information regarding neurological disorders can act as a stepping stone to raise awareness, advance the scientific field, and make treatments and cures a reality.
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FACTS:
- There are over 600 conditions that affect the pediatric brain. While Autism, Cerebral Palsy, and Traumatic Brain Injury are some of the most well-known, there is a large population suffering from rare or undiagnosed conditions.
- Of these 600 disorders, the causes of more than 90 percent are unknown. For the majority, there are no cures.
- In the United States alone, there are over 14 million children that suffer from pediatric neurological conditions. The numbers increase dramatically when taking into consideration the number of children worldwide that also have these conditions.
- The United States spends over half a trillion dollars annually on health care expenses and lost productivity relating to neurological disorders.
- Neurological research has historically focused on symptoms, prevention, and early intervention, while efforts to initiate brain repair have received little funding or attention.
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The information garnered from the survey will be used to compile a report that can be used by patient advocates and patient advocacy groups to better address the general public and engage all in their endeavors.
Please complete the survey and share with your networks to increase the scope of the survey. If chosen to opt in, results of the survey will be sent to your email upon completion.
Our Team:
Davis George, Neurosurvey Co-Founder and Primary Researcher
Davis is a rising senior at Ridge High School. He writes and researches about various advancements in Neuroscience and Neurobiology on the CNS webpage. In the summer of 2014, Davis interned at the Rutgers Department of Neuroscience and Cell Biology on a project involved in Stem Cell Analytics for Autism patients. Davis also participates in volunteering with special needs children through the Bernards Township Parents of Exceptional Children mentoring program. Additionally, Davis holds leadership positions in both his school Chess Club and Economics Club.
Nikhil Kapadia, Graphics Designer and Assistant NeuroSurvey Researcher
Nikhil Kapadia is a freshman attending the Georgia Institute of Technology studying Chemical and Biomolecular Engineering. He researched previously in the field of microbiology at at the Rutgers Department of Biomedical Engineering in 2013 and plans to continue this research at Georgia Tech. Furthermore, Nikhil has been a member of many organizations including Uplift Humanity India and the Parents of Exceptional Children mentoring program
Christine Wang, Assistant NeuroSurvey Researcher
Christine is a rising senior at Ridge High School. This summer, she began working on a project with the non-profit organization, Alex’s Lemonade Stand, and serves as the co-organizer for a school-related event on behalf of the organization. Furthermore, she is the founder and president of the school club, Toastmasters International, which helps enhance public speaking and leadership skills for members. She enjoys volunteering at senior citizen center, and hopes to continue to utilize an interest in business to help make a lasting positive impact on others.
The NeuroSurvey can be found here.
For the purpose of survey dissemination, we encourage all to share the NeuroSurvey with anyone they know using the hashtag #NeuroSurvey on Facebook and Twitter.